Alison Sbrana is a patient researcher with the Patient-Led Research Collaborative and a disability activist living with myalgic encephalomyelitis and other chronic diseases caused by a 2014 viral infection. Sbrana is passionate about bringing her lived experience to the table in health care, research, and public policy circles, and is a patient experience expert for the CDC-funded Long COVID and Fatiguing Illness Recovery Program. She helps lead direct peer support for people with long COVID as a board member of Body Politic, a health justice organization breaking down barriers to care through a global network of COVID-19 patients, chronic illness allies, and disability advocates. Before her illness progressed, Sbrana was a community health worker for Colorado’s Medicaid program.
Previously
Patients, and the networks of people who support them, already play a powerful role in sharpening our understanding of disease, but much more can be done to center their exper...